RESEARCH

Our hope is that through research we will find ways of keeping tumors from forming, or at least keeping them small, and reduce the need for surgical intervention.

Tools for Research

• VHL Research Database - a rich resource for Research
• Policy for Access to VHL Research Database
• Tissue Bank - A Treasury for Research
• Index of Medical Topics
• Index of Family Topics

Grants for Investigation of von Hippel-Lindau Disease

• Preliminary proposals must be received by March 19, 2010
• Application Deadline for Year 2010 Awards is April 23, 2010.

The VHL Family Alliance is announcing a call for proposals to compete for grants for innovative basic and clinical research relevant to the cause, pathogenesis or treatment of von Hippel-Lindau disease.  Awards will be made up to $40,000 and for a period of one year.  A second year of funding will be considered with re-application and demonstration of significant progress during the initial funding period.  Applications are by invitation. 

Please provide a brief (1-2 page) summary of the research plan to Dr James Gnarra (research at vhl.org) on or before March 19, 2010.  Application Deadline for Year 2010 awards is April 23, 2009.  Awards will begin September 1, 2009, and terminate August 31 of 2011.  Information and application materials can be obtained here.  For further information, contact Dr. James Gnarra at research at vhl.org.

Research Grants Awarded

2009 2008 2007 2006 2005 2004 2003 2002  2001  2000 1999   1998  1997

Research Reports

2009 2008 2007 2006 2005 2004 2003 2002  2001  2000  1999   1998    1997

VHL Mutation Database Online

• Prepared by Dr. Christophe Béroud, French VHL Study Group, Montpellier, France

Related Articles

• A Coup for Cancer Research: Progress in Understanding the VHL Gene
• DNA testing for VHL
• Current monographs on VHL available on the internet
• Advances ... one step at a time

Link between VHL and Kidney Cancer

• VHLFF Article on VHL and the Kidney
• Role of the U.S. National Cancer Institute
• Other hereditary syndromes predisposing to kidney cancer
- Birt-Hogg-Dubé (BHD) syndrome
- Hereditary Leiomyomatosis Renal Cell Cancer (HLRCC)
• Summary of the 2008 Kidney Cancer Symposium in patient-friendly language
  • Webinar summarizing the Kidney Cancer symposium

Submitting a Research Proposal to VHLFA

• Grant Application Guidelines, Initial proposal (required)
• Application Form
• Policy for Reviewing Proposals
• Research Advisory Board
• Write to the VHLFA Research Committee research@vhl.org