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Von Hippel-Lindau Family Alliance
Fund for Cancer Research
Grants Program
Table of Contents:
General Guidelines for Applicants
The VHL Family Alliance was established in 1993 as a national voluntary
non-profit health organization whose primary goals are:
- To disseminate timely and accurate information about von Hippel-Lindau
(VHL) to patients, family members, physicians, and other interested
parties
- To provide means for patients and relatives to share experiences, support
one another, and improve their medical care
- To encourage, advise, and establish standards for clinics specializing
in the diagnosis and treatment of von Hippel-Lindau
- To encourage and foster biomedical and other pertinent research on
von Hippel-Lindau syndrome.
- To aid and encourage formation of Chapters and to provide assistance
and guidance to enhance their effectiveness.
General Objective of the Research Grants Program
To provide limited, temporary financial support for innovative basic
and clinical research relevant to the cause, pathogenesis, or treatment
of von Hippel-Lindau disease.
Proposal Outline (Required)
A brief (1-2 page) summary of the proposal must be submitted prior
to the official application and no later than April 1, 2011, to Dr. James Gnarra, Chairman, Research
Committee, VHL Family Alliance, research@vhl.org.
Upon review of this summary, the applicant will be told whether a full
application is warranted. Applications may be submitted upon
invitation only. Proposals may be submitted to or discussed with
Dr. Gnarra at any time during the year.
This application package includes the policies and guidelines governing
the Alliance's grants program. Please detach this section from
the grant application and refer to it if you have questions about the
grant process. For questions not covered in these guidelines,
please contact the VHL Family Alliance Research Committee, James Gnarra, chair, research@vhl.org.
- Grants are made for a period of one year for $20,000 to $25,000 per
year. The number and size of awards are dependent upon the monies
collected through fund-raising efforts in any given year.
- Consideration for a second year of funding will be made upon re-application and demonstration of significant progress during the first year of support.
- Awards do not include overhead.
- The VHL Family Alliance is to receive timely and prior notification
of any publicity based upon this funded research, and one pdf copy of any article when published.
All papers published are to include acknowledgement of the Von
Hippel-Lindau Family Alliance Fund for Cancer Research.
- The deadline for submitting grant applications is May 2, 2011.
Awards will be made on September 1, 2011, and will terminate on August 31,
2012.
All inquiries and requests for applications should be submitted electronically to:
- Dr. James Gnarra, Chair
- Research Committee
- VHL Family Alliance
- research@vhl.org
Policies and Guidelines Governing
Research Grants
Program Description
Research grant awards are for new or established investigators wishing
to pursue a novel idea or concept clearly related to VHL, where ongoing
support is not able to fund the project.
Submission, Review, and Award of
New Applications
Submission
An e-mailable copy (Word, rtf, or pdf) of the completed application must
reach the VHL Family Alliance no later than the date indicated below.
The review schedule is as follows:
| Research Summary/Letter of Intent |
April 1, 2011 |
| Application Receipt Deadline |
May 2, 2011 |
| Review by Research Advisory Board |
May 31, 2011 |
| Review by VHLFA Board of Directors |
June 30, 2011 |
| Applicant Notified |
July 15, 2011 |
| Earliest Activation Date |
September 1, 2011 |
Review and Award
All applications are evaluated by the Research Advisory Board of the
VHL Fund for Cancer Research, whose recommendations are reviewed by the
Board of Directors of the VHL Family Alliance for final approval and funding.
Funding of awards is based on available funds, the priority score awarded
each application, and the recommendations of the Research Advisory Board.
Relevance of the proposed study to issues in VHL is the primary consideration in
determining awards.
All research awards are
subject to observance of the regulations and policies of the VHL Family
Alliance related to that category of research support.
Grant Management
Payment of Grants
Grants are made for a maximum of three years for $20,000 to $25,000 per year,
and do not cover indirect costs.
Payments are made three times a year with the first payment being made
following written acceptance by the grantee and receipt by the Alliance
of a signed copy of its patent policy agreement. Future payments
are contingent upon receipt and approval of progress reports as follows:
| Progress Report |
Payment (Date Subject to Change) |
| ---- |
September 2011 - Initial Payment |
| Midterm - March 13, 2011 |
January, 2012 |
| Final - September 30, 2011 |
April 30, 2012 |
Publications or Exhibits of an Awardee
When a paper or exhibit by an Awardee, based on the work supported by
an Alliance award, is accepted for publication or presentation before
a scientific organization, one pdf copy of said paper, or a suitable description
of the exhibit, shall be forwarded to the Alliance on notice of such acceptance,
together with the name of the publication or the organization accepting
it, and the time and place of the meeting. This information shall
be considered confidential by the Alliance until it is presented.
All such papers and exhibits shall carry a credit line to the Von Hippel-Lindau
Family Alliance.
Publicity
No Awardee shall release for publication, other than through the usual
professional or scientific journals, the results of his or her work without
notifying the VHL Family Alliance of his or her intention to do so and
furnishing a copy of the material intended for release. All announcements
to any media of public information pertaining to a grantee and/or work
to be done or accomplished under a VHL Family Alliance award must have
the approval of the Awardee, the Awardee's institution, and the Alliance.
Financial Reports
A final, audited financial report of grant expenditures and a refund
of any monies unexpended during the period of the grant, must be submitted
to the VHL Family Alliance within 120 days after the termination of the
entire award. An annual financial report of total grant expenditures
and a refund of any monies unexpended during the period of the grant must
be submitted within 90 days after the grant period. Financial reports
should be signed by the responsible institutional financial officer, as
well as the Principal Investigator. Interim accounting may be requested
by the VHL Family Alliance.
Other Sources of Support
It is the responsibility of the Principal Investigator and the institution
to inform the VHL Family Alliance of possible conflicts relative to duplicative
funding of this project by other funding agencies. Failure to advise
the Alliance of other sources of support can result in loss of funds for
the VHL Family Alliance projects.
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