U.S. Chapters exist in the following
states. For non-U.S. affiliates, see below.
Please write to info@vhl.org for more
information about local services in your area, or send mail to the local
contact person by clicking on the hotlink below. If you do not receive
a timely reply, please send your request again to info@vhl.org.
All contacts are volunteers, who may sometimes be temporarily unavailable.
Thank you.
* new since last update
Alabama
Alaska
Arkansas
Arizona
California
Colorado
Connecticut
Delaware
District of Columbia
Florida
Georgia
Hawaii
Idaho
Illinois
Indiana
Iowa
Kentucky
Louisiana
Maine
Maryland
Massachusetts
Michigan
Minnesota
Mississippi
Missouri
New Hampshire
New Jersey
New York
North Carolina
North Dakota
Ohio
Oklahoma
Oregon
Pennsylvania
Rhode Island
South Carolina
South Dakota
Tennessee
Texas
Utah
Vermont
Virginia
Washington state
Wisconsin
Puerto Rico
Virgin Islands
VHL Family Alliance services are available in local language in the following
countries. Groups are forming in Germany, Switzerland, Israel, New Zealand,
Hungary, Poland, and other countries. If you do not receive a timely reply
from the local contact, please send your request again to info@vhl.org.
All contacts are volunteers, who may sometimes be temporarily unavailable.
Thank you.
Jill Shields, Chair
4227 Hamilton Rd.
Dorchester, ON N0L 1G3 Canada
Phone: +1-519-268-1567
E-mail: canada@vhl.org |
Susan Lamb, Co-Chair/Secretary
Windsor, Ontario,
Phone: +1-519-735-0236
E-mail:
canada@vhl.org |
| |
Treasurer:
Sylvia Honselaar, B.Admin, CGA
London, Ontario
E-mail: sylvia_cga@yahoo.ca |
| Chapters: |
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Northern Ontario:
Tania Durand, Northern Ontario
Phone: +1 (613) 622-7976
E-mail: trueedgecanada@sympatico.ca
|
Quebec:
Paul Bonneau, Quebec
Phone: +1 (514) 684-2365
E-mail: paul.bonneau@sympatico.ca |
British Columbia:
Michelle Elliott
Phone: (604) 538-3425
E-mail: Muggy63@shaw.ca |
|
Argentina
Claudia Daniela Cangiano, President
Carlos Alberto Fredes, Executive Director
Asociación Argentina de Familias de Von Hippel-Lindau (AAF-VHL)
Calle: 70 Nº 3566 Ciudad de Necochea Cód. Pos. (7630)
Provincia de Buenos Aires - República Argentina
Tel: +54–2262–52-8735 / +54–2262–15-647129
Email: argentina@vhl.org, asociacion.arg.vhl@hotmail.com
Australia
In Queensland,
Jennifer Kingston,
+61(7) 254 1489 or 0411 105 102
Jennifer & Bruce Kingston
Unit #27503 Ephraim Island
Paradise Point, 4216 Australia
In New South Wales: Paul and Gay
Verco, +61 (2) 9999 3641
In Western Australia: Michael
Walker, +61 (8) 9206 0349
In Victoria: Ros Leydon, +61(3) 9510 7464
Belgium
Dirk Werbrouck (he speaks Flemish, Italian, and English)
Belgium
Phone: +32 51 22 70 61
E-mail: belgie@vhl.org
Website: http://www.vhl.org/belgie
Brazil
Jamile Mansour, President (Portuguese)
Aliança Brasileira de Von Hippel Lindau (ABVHL)
Telefone: +55 11 4354-8640Estrada da Xiboca, 780
Riacho Grande -
S. Paulo
Brasil - CEP 09834-200
E-mail: presidente@abvhl.com
J. C. Casali da Rocha, Oncology (Portuguese, Spanish, English)
BRASIL
E-mail: drrocha@vhl.org
Website: http://www.abvhl.com
Britain
Mary Weetman (English)
27 Westgate Ave.
Holcombe Brook
Ramsbottom
BLO 9SS ENGLAND, U.K.
Phone: +44 (0)1204-886112
E-mail: uk@vhl.org
Website: http://www.vhlcg.co.uk
or
http://www.vhl-europa.org and click on the British flag
Chile, South America
-
Transitioning to new chapter contact
-
E-mail: chile@vhl.org
Croatia
-
Website: http://www.vhl-europa.org/hr/
Denmark, Sweden, Norway,
Finland, Iceland
Susanne Bøgger Hansen & Jens Strandgaard
Allerupvej 2
Allerup
DK-6731 Tjæreborg
Danmark
Telefon: +45 7517 1784
E-mail: info@vhl.dk
Website: http://www.vhl.dk
includes a Forum for VHL in Danish, Swedish, Norwegian, or English
Finland
- Website: http://www.vhl.dk
includes a Forum for VHL in Danish, Swedish, Norwegian, or English
France
Edith Lassus-Laurent, Président
VHL France
Les Ancolies, Angon,
74290 Tallories, France
Tél et Fax: +33 - (0)4 50 64 15 65
Courriel: france@vhl.org
Website: http://www.vhl.org/fr
Germany
VHL-Selbsthilfegruppe
Gerhard Alsmeier (German, English)
Rembrandstrasse 2
Meppen
D-49716 Germany
Phone: +49-5931-929552
E-mail: g.alsmeier@hippel-lindau.de
Website: http://www.hippel-lindau.de/
includes a Forum for VHL in German and English
In Köln: Florian Hofmann
Holland
Belangenvereniging Von
Hippel-Lindau
Ronald Westerlaken
Middenmolenlaan 25
2807 DL Gouda
Phone/Fax: +31-182-515058
E-mail: info@vonhippellindau.nl
Website: http://vonhippellindau.nl
Hungary
- Dr. Helga Süli-Vargha (Hungarian, German, English, Russian)
H-1518, P.O. Box 32, Budapest 112 Hungary
Fax: +36-1-2090602
E-mail: suline@para.chem.elte.hu
Iceland
- Website: http://www.vhl.dk includes
a Forum for VHL in Danish, Swedish, Norwegian, or English
Ireland
Gloria Proby
County Wexford
Phone: +353-402-37232
E-mail: riverfieldfarmhouse@eircom.net
Italy
M. Luisa Guerra (English, Italian)
Loc. Malvicina, 19
Gavi (AL) 15066 Italy
Phone: +39 143 643 220
Fax: +39 143 643 572
E-mail: vhl@vhl.it
Website: http://www.vhl.it/
Japan
- Hanako Suzuki (English, Japanese)
Chairperson, Japan
Phone: +81.88.880.2402
E-mail: japan@vhl.org
Website: http://www.vhl.org/japan
New Zealand
- Jon and Valerie Johnson (English)
- 17 Kate Sheppard Ave
- Torbay, Auckland, New Zealand
- Phone/Fax: +64 9 4730900
- E-mail: jonandvalerie@xtra.co.nz
Norway
- Website: http://www.vhl.dk includes
a Forum for VHL in Danish, Swedish, Norwegian, or English
Poland
Dr Wojciech Lubinski, GENETICS
Pomeranian Ac of Medicine
ul.Powstancow Wlkp. 72
Szczecin
70-111 Poland
W: +48 91 4661313
E-mail: poland@vhl.org
Portugal
Website: http://www.vhl-europa.org/p/
South Africa
Markus van Vuuren
+27(0)82-779-5019
southafrica@vhl.org
Dr. Lizette van Rensburg
+27(0)12- 319-2636
Spain
Karina Villar, M.D.
Allianza espańola de familias de von Hippel-Lindau (A.E.F.-VHL)
Centro Civic Rogelio Soto-Apartado nº5
C / Campoamor, 93-95
08204 Sabadell - Barcelona
Tel: +34-93-712-3989 o +34.61-605-0514
Otro teléfono: +34-60 768 0759
E-mail: alianzavhl@hotmail.com
Website: http://www.alianzavhl.org
Sweden
- Website: http://www.vhl-europa.org/sw/
http://www.vhl.dk includes
a Forum for VHL in Danish, Swedish, Norwegian, or English
Switzerland
- Erika Trutmann
Alte Kantonstraße 6
CH-6440 Brunnen
Fax: +41 41 820 63 73
Telefonischer Kontakt: Regula Eggenschwiler +41 55
445 20 91
E-mail: info-ch@vhl-europa.org
Website: http://www.vhl-europa.org/switzerland/
Turkey
Website: http://www.vhl-europa.org/tr/
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