Basic Facts About VHL
Managing Your Health
Information for Health Care Professionals
Research
About the VHL Family Alliance
Press Room
Families, Friends, Physicians, and Researchers working together to improve diagnosis, treatment,
and quality of life for people affected by von Hippel-Lindau disease.

FAQ*

*Frequently Asked Questions

Return to FAQ Table of Contents

How do I use this website?

On the HomePage (www.vhl.org) we keep a listing of the interesting new things we have added to the site, announcements of forthcoming events, etc.

At the top of each page there is a graphical menu with six segments.  You can click on one of these segments to go to the primary divisions of the site:

  • VHL Family Alliance bar at the top takes you back to the homepage at any time.
  • Basic Facts About VHL is the entry point for the general public, describing what VHL is
  • Caring for your Health is detailed information on screening guidelines, both for patients and for doctors
  • Research is primarily for professional researchers, or for others who want to know what research is going on, or how our research grants process works.
  • Professional Information is a section prepared with doctors and other medical professionals in mind.  The information highlighted there is more medically detailed, to assist medical personnel in doing their best for their patients with VHL.
  • About the VHL Family Alliance tells about the organization itself, its history and accomplishments, and how members can participate in the work of the Alliance.