Teens Page

	Basic Facts About VHL Managing Your Health Information for Health Care Professionals Research About the VHL Family Alliance Press Room
Families, Friends, Physicians, and Researchers working together to improve diagnosis, treatment, and quality of life for people affected by von Hippel-Lindau disease.

Many thanks for the suggestions we have received! We need your suggestions to help grow this page!

Thanks to Marie for our first mascot! Please send your suggestion for the next one, and we'll change them from time to time. Here are the ones that have been submitted so far.

Here are some of the frequently asked questions (FAQ) we have received from readers. Please send in your own questions to add to this list.

And here are some stories from teens who have shared their stories with us. We'd love to hear from you too!

What suggestions do you have? How can we better meet your needs? Reply here.

Please help make this service what you want it to be! Write to us... or call the hotline free at 1-800-767-4VHL (from outside North America, call +1 (617) 277-5667. There's a charge for the international call, but if you wish, we'll call you back to keep your costs down).

-- Joyce Graff, Executive Director, VHL Family Alliance

Don't forget to send us your ideas and suggestions!

Note: If you don't have a POP mailer set up, click here to reply using only a web browser. If you are not sure whether you can send an e-mail message to the internet from your school, or if you sent us a note and haven't heard back from us, this web email form is the way to go.