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When you have completed the form, please press the SUBMIT button at the bottom of the page. Results are sent to Joyce Graff and are kept in strictest confidence.
I like your suggestion about (mark all you like):
telephone conference call members-only internet chat room members-only internet bulletin board send questions in, answers appear in FAQ more stuff on this homepage frankly, I think all these suggestions are dumb my own suggestions are much more brilliant (see below)
I'd really like to see (write your brilliant suggestion(s) here):
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When you have questions about VHL, where do you find answers?
My parents answer my questions My parents don't want to talk about it My doctor or health care team answer my questions My school nurse answers my questions I read the newsletter I don't understand much of what's in the newsletter I never see the newsletter I look on the internet I talk with my friends I don't get answers, I just worry I really don't think about it Other
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