VHL FAMILY ALLIANCE’S ANNUAL REPORT AVAILABLE NOW

(Boston, MA-November 24, 2008)- This week VHLFA published and began mailing its 2008 annual report. 
The annual report is coming just in time for the holiday season with a clear message. “We want our supporters to know that their money is being put to good use,” says Research Services Coordinator, Ranjana S. who has recently been working to make huge advancements in VHLFA’s research partnership with NDRI (National Disease Research Interchange).
The staff and board members intend the annual report to remind members to keep VHLFA in mind during the approaching giving season. The annual report will cover topics from VHLFA’s progress in its tissue bank and DNA report programs, expansion internationally, new developments in drug study and treatment from researchers to fundraising activities and newly awarded challenge grants.
The annual report’s articles are already available online along with a printable pdf version at www.vhl.org. The printed copies are currently being mailed out with a personalized letter from the chair and vice-chair of the board, Camron King and Jeanne McCoy. They are scheduled to arrive this week.    
About Von Hippel-Lindau Disease
 VHL is a genetic cancer syndrome involving the abnormal growth of blood vessels in some parts of the body which are particularly rich in blood vessels. It is caused by a flaw in one gene, the VHL gene, on the short arm of chromosome 3, which regulates cell growth.
About VHL Family alliance
VHLFA is a non-profit organization that provides information for families and physicians about this disorder and local self-help support groups for families affected with VHL. It is dedicated to improving diagnosis, treatment, and quality

of life for individuals and families affected by Von Hippel-Lindau disease.  

Media Contact:

Anita Kalathara                                                                                               
VHL Family Alliance
2001 Beacon St., Suite 208
Boston, MA 02135

T: 1-800-767-4845
F: 1-858-712-9712     

www.vhl.org
anita@vhl.org

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