VHL Research

The Cancer in Our Genes International Databank (CGIP) is Here!  Participate Now!

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Increase in Life Expectancy: link to article

Thanks to advances in medical research, clinical guidelines for screening, diagnosis, and treatment have been developed which have contributed to extending VHL patient life expectancy by over 16 years! Our hope is that through continued research efforts, we will find ways of keeping tumors from forming, or at least keeping them small, and reduce the need for surgical intervention.

Updated Compilation of VHL Gene Mutations and associated patient phenotypes: Provided by Dr. Rachel Giles


If information from this database is used for publication, please cite the following:
Genetic Analysis of von Hippel-Lindau Disease.  Nordstrom-O’Brien M, van der Luijt RB, van Rooijen E, van den Ouweland AM, Majoor-Krakauer DF, Lolkema MP, van Brussel A, Voest EE, Giles RH. Hum Mutat. 2010 May;31(5):521-37. doi: 10.1002/humu.21219. PMID: 20151405

Please remember, accomplishing these efforts is dependent on your financial contribution or fundraising efforts!
Together we can uncover a cure!

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Last Modified: April 24, 2015

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