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VHL ONLINE SHOPPING
Books and Literature
$17.00
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How Are You? Managing Your Own Medical Journey by Patricia Foote
Ms. Foote tells her own story in a very moving way. Based on her personal experience with VHL, she provides guidelines for people with any chronic or rare disease—strong lessons in being a savvy consumer. Any serious illness deeply shakes our sense of self, and indeed the meaning of life. She shares her journey from diagnosis through multiple procedures to the new reality of living—yes, happily!—with a chronic illness. After reading this book, you may never use the question, "How are you?" in the same casual way again.
$17.00 Add To Cart
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$14.95
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A Time to Walk: Lessons Learned on the Appalachian Trail by Jay Platt
"What’s one trait that the truly successful share? Although some might argue that it is their background, education, or status, I disagree. Rather, I believe that if you were to study the lives of anyone who’s made a mark in this world, you’d find one common denominator that exists—it’s their attitude, particularly, their attitude of perseverance."
Jay Platt, a retired Marine who has VHL, shares his experiences walking the Appalachian Trail, 2167 miles from Maine to Georgia, in 1999, "with one eye and a brain tumor."
$14.95 Add To Cart
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$15.00
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Sacred Process by Karen Koenig
There is something
Inside me
More substantial than
A kidney or an ovary.
Something which cannot be
Cut away or altered or
Overcome.
It is all part of
The sacred process
Of my life.
All is well
Peace
All is well. |
Karen was an artist and poet who had VHL. "Inherent in her poems is a joyful, natural, and unencumbered spirituality that is universal in its applicability. Despite her impaired vision, she has the capacity to see and perceive, as well as the will to enjoy."
Thanks to a gift from the Koenig family, all proceeds from sales of this book of poetry go to the VHL Family Alliance.
$15.00 Add To Cart
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$30.00
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VHL: A Study in Preventive Medicine by Dr. Hartmut Neumann in German with color plates
Dr. Hartmut Neumann won a prize in 1999 for Preventive Medicine, awarded by the Insurance Companies of Germany, for his work in improving outcomes for people with VHL. The original Prize-winning German monograph, with color plates and charts, is available for $30 USD from the VHL Family Alliance, or 50 DM from the author in Germany. The English translation of the text is available here free over the internet (without illustrations).
$30.00 Add To Cart
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