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VHL ONLINE SHOPPING
Books and Literature
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2009 Edition, VHL Handbook
Now Free while supplies last! ($2 to cover shipping cost)
$2.00
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VHL Handbook Kids' Edition by VHL Family Alliance
Our beautiful new VHL HANDBOOK KIDS' EDITION is available for $12.99, but members can purchase it for just $6.50. Follow the link below to start your purchase!
"Written by a team of parents and professionals, and illustrated by kids with VHL, the book is upbeat and hopeful, helping children understand VHL and how to manage their health."
$12.99 (non members)
$6.50 (paid-up members only)
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$17.00
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How Are You? Managing Your Own Medical Journey by Patricia Foote
Ms. Foote tells her own story in a very moving way. Based on her personal experience with VHL, she provides guidelines for people with any chronic or rare disease—strong lessons in being a savvy consumer. Any serious illness deeply shakes our sense of self, and indeed the meaning of life. She shares her journey from diagnosis through multiple procedures to the new reality of living—yes, happily!—with a chronic illness. After reading this book, you may never use the question, "How are you?" in the same casual way again.
$17.00
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$15.00
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Sacred Process by Karen Koenig
There is something
Inside me
More substantial than
A kidney or an ovary.
Something which cannot be
Cut away or altered or
Overcome.
It is all part of
The sacred process
Of my life.
All is well
Peace
All is well. |
Karen was an artist and poet who had VHL. "Inherent in her poems is a joyful, natural, and unencumbered spirituality that is universal in its applicability. Despite her impaired vision, she has the capacity to see and perceive, as well as the will to enjoy."
Thanks to a gift from the Koenig family, all proceeds from sales of this book of poetry go to the VHL Family Alliance.
$15.00
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$30.00
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VHL: A Study in Preventive Medicine by Dr. Hartmut Neumann (in German with color plates)
Dr. Hartmut Neumann won a prize in 1999 for Preventive Medicine, awarded by the Insurance Companies of Germany, for his work in improving outcomes for people with VHL. The original Prize-winning German monograph, with color plates and charts, is available for $30 USD from the VHL Family Alliance, or 50 DM from the author in Germany. The English translation of the text is available here free over the internet (without illustrations).
$30.00
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$2.00
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VHLFA Brochures
25 free copies of our brochure. You pay shipping only.
$2.00
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Shop our Amazon Affiliate Bookstore for more great titles. |
