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VHL Symposium 2012
Houston, Texas (Sunday)
VHL Family Meeting - Sunday, January 29, 2012
VHL Family Meeting
Welcome and Introduction
chair: Ilene Sussman, PhD,
Executive Director, VHL Family Alliance
Summary: Part 1 of 3
(5 minutes)
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What Does This All Mean?
Lay Synopsis of the
10th VHL Medical Symposium 2012:
Day One: Scientific Advances
Rachel Giles, PhD
Summary: Part 2 of 3
(17 minutes) |
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What Does This All Mean?
Lay Synopsis of the
10th VHL Medical Symposium 2012:
Day Two: Clinical Advances
Joyce Graff, Director of Wellness
Summary: Part 3 of 3
(25 minutes, followed by Q&A with the scientists) |
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Navigating through the Forest: Finding Appropriate Medical Care
Patricia Rauch and Sue Buckley |
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Engaging Children and Young Adults in a
Safe Discussion about VHL
Adiaha Spinks-Franklin, MD, MPH, Ariel Reinish, and
Ronald Westerlaken |
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DNA Testing: What Does it Mean to Me and My Family?
Molly Daniels, MS, CGC and Catherine Stolle, PhD |
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Closing Remarks and Hopes for the Progress we can make together
Eric Jonasch, MD |
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[Last modified
06-Feb-2012
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