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Topic Album:

Adrenal tumors, Pheochromocytoma, Paraganglioma

The following presentations are on the topic of diagnosis and treatment of adrenal tumors, pheochromocytoma, and extra-adrenal pheochromocytomas (also known as paragangliomas). Discussions of diagnosis apply to pheos of all origins. Treatment recommendations are focused on the needs of people with VHL. Treatment for pheos of other origins may differ if the risk of metastasis is higher than in VHL. In VHL, less than 3% of pheos ever metastasize.

 

 

Rocky Road to Diagnosis

The Rocky Road to Diagnosis
Members share their stories