2015 Fundraising Dinner & Auction

Please Join Us for the 4th Annual VHL Alliance
Fundraising Dinner & Auction


♦  Sarah Nielsen, MS, CGC  


♦  Jan & Scott Capinegro  

Friday, October 16, 2015
6:30-10:00 p.m.

Cocktails start at 6:30 pm, Dinner at 7:30 PM

Tickets Cost $125 per person

MeridianMeridian Banquets and Conference Center
1701 W Algonquin Rd, Rolling Meadows, IL 60008


On October 16, 2015, in Chicagoland, the VHL Alliance will take time to honor three prominent individuals in the Chicago, Illinois, area who have helped further the cause of the VHL Alliance.

Sarah Nielsen, MS, CGC

Sarah Nielsen, MS, CGC

Sarah Nielsen, MS, CGC, is on the VHL Alliance Board of Directors. She is a genetic counselor in the Cancer Risk Program at the University of Chicago and established the Endocrine Genetics Clinic as well as the VHL Comprehensive Clinical Care Center at the University of Chicago.

During graduate school in Pittsburgh, she worked as a clinical researcher for the Department of Endocrine Surgery, where her focus was VHL type 2A. Her findings regarding genotype-phenotype correlations in two regional VHL 2A kindreds are published in the American Journal of Medical Genetics and Familial Cancer. Sarah is actively involved in the research of VHL and other related hereditary renal cancer and paraganglioma/pheochromocytoma syndromes.


Jan & Scott Capinegro

Jan Capinegro is a former member of the VHLA Board of Directors and an Executive with The Pampered Chef. Scott Capinegro is a member of the Chicago Board of Trade and President of Barrington Commodities Brokers.

Jan and Scott’s son Tony was diagnosed with a VHL mutation at age 15. Tony is now happily married to Melissa, and welcomed their first child in April. The Capinegro family and friends are ardent supporters of the VHLA which has been a valuable resource for support, education and research.

Please plan to join us in honoring these prominent individuals dedicated to education, research, and awareness of von Hippel-Lindau.

The goal of this event is to raise additional money to add to the VHLA Research Program.


LODGING: Hyatt Regency Schaumburg, Chicago, 1800 East Golf Road, Schaumberg, IL 60173. There are a limited number of rooms at the $89.00 rate + 14% tax.

To make a reservation, please use this link: https://resweb.passkey.com/go/VHLAlliance. You can also call the hotel directly at 847-605-1234 and ask for Central Reservations; please reference: VHL Alliance. Please make your reservations by 10/9/2015 (cut-off date)


If you are paying by check, make payable to the VHL Alliance and mail to 2001 Beacon St., Suite 208, Boston, MA 02135


Click here for a SPONSORSHIP form

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Gold The Lusk Family
Silver The Richard Lusk Family


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Last Modified: September 22, 2015

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