vhl alliance

Moffitt Cancer Center to Partner with VHL Alliance on 2017 Family Weekend

Patients, families, and caregivers welcome to participate in weekend events

TAMPA, Fla. (Oct. 11, 2017)Moffitt Cancer Center is partnering with the VHL Alliance for their Annual Family Weekend Oct. 13-15 with a number of events open to VHL patients, family members and friends.

VHL Alliance, the world’s leading organization supporting von Hippel-Lindau Syndrome, a genetic form of cancer, will host the following events during the 2017 Family Weekend:

Friday, Oct. 13
    Fundraising Dinner & Auction, Busch Gardens, Gwazi Pavilion, 6:30 p.m.

Saturday, Oct 14
    Annual Family Meeting, Moffitt Cancer Center, 7:45 a.m. Click here to view the meeting agenda
Teen event, Busch Gardens for the day
Young Adult Happy Hour, Embassy Suites Lobby, 6:30 p.m.

Sunday, Oct. 15
    Team VHL 5K run/walk, meet at Embassy Suites Lobby, Check-in at 8 a.m., $25 registration fee

For a list of all event details, times and locations, please click here.

At the fundraising dinner on Friday, Oct. 13, VHL Alliance will honor the Moffitt VHL Clinical Care Center Team for their work and support of VHL. Those being honored include Dr. Philippe Spiess, Dr. Pamela Hodul, Martha Hanthorn, Dr. Lora Thompson, Dr. Jamie Caracciolo, Dr. Jason Klapman, Dr. Margarita Bobonis Banilonia, Dr. Brian Madow, Dr. Mayer Fishman, Dr. Solmaz Sahebjam, Dr. Nam Tran, Dr. Sepideh Mikhtari, Dr. Claude Bassil, Dr. Xia Wang, Christine Bruha, Dr. John Tourtelot, Dr. Kristen Otto, Jenni Ocampo, RN, Maxine Chang, ARNP, Dr. Sachin Apte, and Dr. Frank Kaszuba.

“We are thrilled to pay tribute to the Moffitt VHL Clinical Care Team for their dedication to education, research and awareness of von Hippel-Lindau,” said Ilene Sussman, Executive Director of the VHL Alliance. “Funds raised through this event are essential to the VHL Alliance and our ongoing commitment to educating and supporting those with VHL.”

For information on the VHL Alliance 2017 Family Weekend, email Heidi Leone at Heidi.Leone@vhl.org.

ABOUT MOFITT CANCER CENTER
Moffitt is dedicated to one lifesaving mission: to contribute to the prevention and cure of cancer. The Tampa-based facility is one of only 49 National Cancer Institute-designated Comprehensive Cancer Centers, a distinction that recognizes Moffitt’s excellence in research, clinical trials, prevention and cancer control. Moffitt is listed as one of the top 10 cancer hospitals in the nation and has been listed in U.S. News & World Report as one of the Best Hospitals” for cancer care since 1999. Moffitt devotes more than 2 million square feet to research and patient care. Moffitt’s expert nursing staff is recognized by the American Nurses Credentialing Center with Magnet® status, its highest distinction. With more than 5,700 team members, Moffitt has an economic impact in the state of $2.1 billion. For more information, call 1-888-MOFFITT (1-888-663-3488), visit MOFFITT.org, and follow the momentum on Facebook, Twitter and YouTube

ABOUT VHL

 

Von Hippel-Lindau (VHL) is a genetic condition involving the abnormal growth of blood vessels. The vhl gene controls cell behavior and prevents tumor formation. For people with von Hippel-Lindau, the vhl gene does not function properly, causing tumors to grow in up to 10 different parts of the body throughout a patient’s life. With no known pharmacological treatment, surgery is the only option for VHL patients. VHL knowns no boundaries; it affects approximately one in 36,000 people in every ethnic group. The prevalence of VHL is approximately the same as muscular dystrophy and one-half that of cystic fibrosis.