vhl alliance

Parents of VHLers Discussion Group

May Parents of VHLers Telephone Discussion Group

TOPIC:  Self Care

Parents of children with VHL face endless physical, emotional, and spiritual challenges as they serve loved ones dealing with a lifetime of a chronic, rare disease. The Parents of VHLers Telephone Discussion Group is designed to provide a safe environment where parents can feel comfortable, without feelings of guilt for expressing their own challenges, as they reach out to others to fill the gaps in their social, mental, and physical well-being.

Please join us on Monday, May 21st to discuss how parents of VHLers can provide the best possible care to their children by taking care of themselves.  All parents of VHLers are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion!

This facilitated call takes place on the third Monday of every other month at 8 PM ET.


May 21st 8:00 PM Eastern Time

For more information, including the call-in number, please call the VHL office at 617.277.5667 x4 or email info@vhl.org.