vhl alliance

Parents of VHLers Discussion Group

January Parents of VHLers Telephone Discussion Group

TOPIC:  Challenges Unique to Parents of VHLers

Parents of children with VHL face endless physical, emotional, and spiritual challenges as they serve loved ones dealing with a lifetime of a chronic, rare disease. The Parents of VHLers Telephone Discussion Group is designed to provide a safe environment where parents can feel comfortable, without feelings of guilt for expressing their own challenges, as they reach out to others to fill the gaps in their social, mental, and physical well-being.

Please join us on Monday, January 22nd to discuss the importance of getting support and the challenges in doing so.  All parents of VHLers are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion!

This facilitated call takes place on the third Monday of every other month at 8 PM ET. Please note that due to MLK Day, the January call will be held on Monday, January 22nd.


January 22nd 8:00 PM Eastern Time

For more information, including the call-in number, please call the VHL office at 671.277.5667 x4 or email info@vhl.org.