This article will be about a brave woman who battles one of those rare afflictions, a gene mutation with a strange name. Most of us seldom think about how devastating some diseases can be.
…until it hits close to home.
The rare Von Hippel-Lindau (VHL) disease was diagnosed during tests on Haley Miller when she was 20. She underwent genetic testing, then a relatively new science, and was diagnosed with VHL. She has been under treatment since then, but possible changes in healthcare policies might compromise Haley’s ongoing treatment.