vhl alliance

There are no true rules for the VHL journey. It is different for everyone. VHL impacts everyone, the VHLer and those who love the VHLer.  Read how others are living through and thriving during their journey.

Young Adult

NEW Blog

My von Hippel-Lindau, My Life, and Me by Nicola T.
#thrivingwithVHL by Andrea B.

Alternative Medicine

My VHL Journey by Renee S.


Embracing the VHL Community by Deanna W.

Disability Insurance

Adventures in Applying for and getting SSI Disability by Cathy C.

Family Planning

The Journey Right for Us by Wheatley D.
A Child of Our Love by Anonymous 

 Managing Stress

When Life Give You Lemons by Leona
Yoga and Stress by Lisa J.

To submit a blog, email: blog@vhl.org