vhl alliance

There are no true rules for the VHL journey. It is different for everyone. VHL impacts everyone, the VHLer and those who love the VHLer.  Read how others are living through and thriving during their journey.


Disability Insurance

NEW Blog

Adventures in Applying for and getting SSI Disability by Cathy C.


Alternative Medicine

My VHL Journey by Renee S.


Family Planning

The Journey Right for A Child of Our Love Us by Wheatley D.
A Child of Our Love by Anonymous 


Managing Stress

When Life Give You Lemons by Leona
Yoga and Stress by Lisa J.


Young Adult

#thrivingwithVHL by Andrea B.


To submit a blog, email: blog@vhl.org