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Canadian VHL Alliance
July 2023 Newsletter
In this Edition:
- Belzutifan gets positive CADTH Recommendation
- Warrior Walk 2023
- Canadian VHL Alliance Swag
- Jess Pearson "My Family Legacy" poem
- CVHLA Macleans.ca Feature
About the Canadian VHL Alliance. purpose and objectives
A brief summary about the disease, it's origins, diagnosis and treatment
The Canadian VHL Alliance is a team of caregivers and carriers working together. Read more to learn about the Board and the volunteers involved.
Our Vision
The Canadian VHL Alliance has been supporting VHL research for almost twenty years and is dedicated to raising funds for the research and ultimately for finding a cure for VHL while improving the quality of life for those affected by VHL.
We are pleased to share the CADTH positive recommendation for Belzutifan, next steps for in the process for the drug and other information.
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