vhl alliance

Regional Chapters

Living with VHL is not always simple for both the patients, families and friends. VHL is a journey with many ups and downs. It can help to talk or interact with someone who is on the same journey. Join a support program. Pick up the phone and call, if only just to talk for a while, or join the online support group.


Regional Chapters exist throughout the US as a way of providing a local voice to the resources that the VHL Alliance for caregivers and patients. Send mail to the local contact person. Please note: all contacts are volunteers, who may sometimes be temporarily unavailable. If you do not receive a timely reply, please contact the VHLA Office.

All email addresses below follow the same pattern: US-<postalcode>@vhl.org

AL Alabama LA Louisiana OH Ohio
AK Alaska ME Maine OK Oklahoma
AZ Arizona MD Maryland OR Oregon
AR Arkansas MA Massachusetts PA Pennsylvania
CA California MI Michigan RI Rhode Island
CO Colorado MN Minnesota SC South Carolina
CT Connecticut MS Mississippi SD South Dakota
DE Delaware MO Missouri TN Tennessee
DC District of Columbia MT Montana TX Texas
FL Florida NE Nebraska UT Utah
GA Georgia NH New Hampshire VT Vermont
HI Hawaii NJ New Jersey VA Virginia
ID Idaho NM New Mexico WA Washington State
IL Illinois NYC New York City area WV West Virginia
IN Indiana NY New York WI Wisconsin
IA Iowa NE Nevada WY Wyoming
KS Kansas NC North Carolina PR Puerto Rico
KY Kentucky ND North Dakota VI Virgin Islands