vhl alliance

Participate in Research

VHLA is committed to advancing the understanding of VHL and related cancers. People with VHL can help researchers achieve this goal, improve treatments, and hopefully one day find a cure for VHL.


The Patient Natural History Study is an important tool designed to provide researchers a better understand how VHL impacts the whole person and how lifestyle choices impact VHL. This is a longitudinal study;  participants take surveys about their health and submit medical scans on an ongoing basis.

Clinical trials are also a great option to contribute to the continuing journey toward a cure. Review the list of clinical trials in progress, and check with your doctor to see if you may qualify to participate. The most up-to-date scientific and research literature in the field of VHL research can be found here.