VHLA is committed to advancing the understanding of VHL and related cancers. People with VHL can help researchers achieve this goal, improve treatments, and hopefully one day find a cure for VHL.
The Patient Natural History Study is an important tool designed to provide researchers a better understand how VHL impacts the whole person and how lifestyle choices impact VHL. This is a longitudinal study; participants take surveys about their health and submit medical scans on an ongoing basis.
Clinical trials are also a great option to contribute to the continuing journey toward a cure. Review the list of clinical trials in progress, and check with your doctor to see if you may qualify to participate. The most up-to-date scientific and research literature in the field of VHL research can be found here.