Advocacy
Your voice is important and your story is impactful! Please use it to help advocate for federal dollars to expand VHL scientific research.
Join us as we advocate for more VHL research funding. Register your interest here and we will be in touch with more information.
We encourage you to help us advocate for federal dollars to expand VHL scientific research.
The two sources of the federal dollar that support medically-related scientific research are: 1) the National Institutes of Health’s (NIH) extramural grant program and 2) the Department of Defense’s (DOD) Congressionally Directed Medical Research Program (CDMRP). In 2022, our advocacy led to VHL being named as a condition eligible for CDMRP research funding in the Peer Reviewed Cancer Research Program (PRCRP).
However, every year we have to fight to renew this vital funding for a cure. A major first step is to ask Congress to recognize that finding a treatment and cure for VHL is a key to treating and curing many other forms of cancer and to strongly encourage NIH to support additional internal research and extramural grants on VHL.
Such advocacy is not just a seasonal project that takes place during Congress’ budget appropriation process; it is a year-round process.