PLEASE NOTE: All of the medical facilities listed on this page have VHL CCC teams that have been evaluated and approved by VHL specialists comprising the Clinical Advisory Council. However, not all specialists at these facilities are on the CCC team. As such, you may very well encounter a physician working at an institution with a CCC that does *not* have experience with VHL. (You may also find specialists that have some experience with VHL but are not members of the CCC team that has been evaluated by the Clinical Advisory Council.) The VHL Alliance is *only* endorsing the VHL CCC team and its members. Please make sure to communicate with the CCC’s Point of Contact to verify that you receive care from specialists that have experience caring for VHL patients.
Hospital Italiano de Buenos Aires, Buenos Aires
Contact, Adults: Valeria de Miguel, MD, Endocrinology, Metabolism and Nuclear Medicine Unit.
Tel: +541149590200, ext: 4849/8442; Fax: +541149590323 E-mail: email@example.com
Contact, Pediatrics: Gabriela Sansó, PhD.
Tel: +5441149635931, ext: 129; Fax: +541149635930
Hospital Privado Centro Médico de Córdoba. Monica Blascetta, Servicio de Nefrología.
Prince of Wales Hospital, Sydney. Hereditary Cancer Clinic.
Memorial University of Newfoundland, St. John’s, NF.
Contact: Dr. Jane Green, Medical Genetics.
Tel: 1-709.777.6242 Fax: 1-709.777.7317
Toronto General Hospital, Toronto, ON.
Contact, Adults: Laura Legere, RN.
Tel: 1.416.340.3111 x6243
Pediatrics: The Hospital for Sick Children, Toronto, ON
Contact: Harriet Druker, MSc., Cancer Genetics Program
Peking University First Hospital, Beijing,
Contact: Gong Kan, MD.,
Tel: +86 (10) 83575101; Fax: +86 (10) 66552211
ADULT AND PEDIATRIC
Albert-Ludwigs University Medical Center Freiburg.
Contact: Stefan Zschiedrich, MD, Nephrology
Tel: +49.761.27034140; Fax: +49.761.34140
Amrita Institute of Medical Sciences, Elamakkara Post, Kochi, Kerala.
Contact: Ashok Pillai, MD, Neurosurgery.
Tel: Fax: + 91.484.280.2020
Hadassah University Hospital, Jerusalem.
Contact: Simona Glasberg, Endocrinology.
Tel: +972 (0)2.677.8899
Kochi Medical School Hospital, Nankoku Kochi.
Contact: Mari Tashiro, Genetic Counselor
Department of Clinical Genetics
University Hospital Utrecht.
Rachel Giles, PhD, Internal Medicine.
E-mail: r.giles at umcutrecht.nl
Pomeranian Academy of Medicine, Szczecin.
Contact: Karol Krzystolik, MD, Genetics.
Tel: ; Fax: +48 (91) 4828.450; E-mail: firstname.lastname@example.org
Care for VHL and other genetic conditions in the UK is organized under the local genetics centres. People should begin by contacting their local centre, which will network with the major centres as necessary.
University of Birmingham
Contact: Sue Carless
University of Cambridge
Contact: Prof. Eamonn Maher, Dept. of Medical Genetics.
St. Bartholomew’s Hospital, London
Contact: Ms. L. McAndrew, Neuroendocrine Clinical Nurse Specialist.
Tel: +44 (0) 203.465.7264
Churchill Hospital, Oxford
Regional Genetics Service