Be a part of VHLA history by joining walkers all over the country in the first ever VHL walk! Sign up as a team or individual walker to fundraise. Then, on walk day, gather with your team (and maybe even other teams in your area) to watch our kickoff video online, then walk around your...
Third Monday of every other month. Please join us on the third Monday every other month to discuss how we can help our children thrive with VHL. Our topic How to navigate the challenging emotions that come with having a child with a chronic illness (and how to know when we aren’t doing that...
Join us for VHL Alliance Family Weekend hosted at UT Southwestern in Dallas on September 6-8! Immerse yourself in a community of strength as we come together to share our VHL experience, build lasting connections, and learn directly from VHL experts. 🏛️ UT Southwestern will serve as the backdrop for a series of engaging events, informative sessions,...
Join the leading VHL researchers, physicians, and experts in Milan! What: The 16th International VHL Medical Symposium, hosted by the VHL Alliance and the San Raffaele Scientific Institute, will bring scientists, clinicians and advocates together for two days of collaboration, idea exchange, and thought leadership. Where: Congress Centre HSR / Via Olgettina 58 – Milano, Italy When: October...
