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VHL Handbook

The VHL Handbook is an important reference handbook for people living with von Hippel-Lindau, their families, loved ones, and their medical team.


Written in “lay language”, the handbook contains the most up-to-date information about diagnosing and treating VHL. It is an essential guidebook for living and thriving with VHL.

VHL Handbook

The Handbook can be purchased through the VHL Alliance website store and Amazon or can be downloaded for free.

The VHL Handbook is available in multiple languages. Please contact the VHL Alliance for more information: office@vhl.org.

VHL Handbook Kids' Edition