• Vision and Mission

    VISION: VHLA envisions a cure for VHL

     
    MISSION: VHLA is dedicated to research, education, and support to improve awareness, diagnosis, treatment, and quality of life for those affected by VHL.
     
    VHL or von Hippel-Lindau is a genetic form of cancer. VHL patients battle a series of tumors throughout their lives. The VHL gene is involved in many other forms of cancer. Finding a cure for VHL will play a vital role in curing cancer!

  • Faces of VHL



    JOIN US FOR THE:
    2015 Annual Patient/Caregiver Meeting
  • Testimonials

    I am a physician working with von Hippel-Lindau (VHL) patients and patients with many other genetic diseases. The VHL Alliance is most helpful and best organized genetic support group of any kind. I wish patients with other genetic disorders had a support group as well organized and useful as the VHL Alliance.

    Dr. Michael Gorin, Ophthalmologist and member of a VHL Clinical Care Center, UCLA, Los Angeles, CA


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  • ABOUT VON HIPPEL-LINDAU (VHL)

  • VHL ALLIANCE HIGHLIGHTS

  • PLEASE HELP US FIND A CURE

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  • WHAT’S NEW AT VHLA

    VHLA Program Available to You
    VHLA is your community of caring and support. See the summary of one of our new programs:

    Clinical Care Center Updates
    New Clinical Care standards were announced to our current CCCs. Several have upgraded to the new standards:
    Comprehensive Clinical Care Centers (CCCC)
    Clinical Care Centers (CCC)
    To understand the standards CLICK HERE
    For the most current updates CLICK HERE

    FUNDRAISE FOR VHLA WHILE SHOPPING ONLINE

    Help VHLA when you shop at
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    Help the VHL Alliance every time you shop at 1,587 of the most popular online stores:
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    OCTOBER 2015 EVENTS IN CHICAGOLAND

    Fundraising Dinner & Auction
    Join us on Friday, October 16, 2015 to honor Sarah Nielsen, MS, CGC, and Jan & Scott Capinegro. See details

    Annual Patient-Caregiver Meeting
    Join us on Saturday, October 17, 2015 to find out the latest information on VHL.
    See agenda and details

    Team VHL 5K Run/Walk
    Join us on Sunday,
    October 18, 2015.
    See details

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    ©2015 by The VHL Alliance. All Rights Reserved.
    The VHL Alliance is a tax exempt 503(c)3 corporation
    Last Modified: September 23, 2014




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