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Von Hippel-Lindau Family Alliance (VHLFA)

The new VHL Handbook is now available!

Click Here

- Click here to Register Now-

Annual VHL Family Alliance National Meeting and
Fundraising Dinner & Auction

Saturday, November 17, 2012
Boston, MA

Movie

Click Movie link above to see our animated video and learn more about von Hippel-Lindau disease
Kids' Book

The VHL Children's Handbook is now available

Click the Kid's Book tab above to order.
Calendar

Upcoming meetings

and reports and recordings from prior meetings and conferences
Newsletter

The Spring 2012 Newsletter
Is Now Online!

Click tab above to read it

VHL Family Alliance

Von Hippel-Lindau (VHL) is a genetic condition causing the abnormal growth of blood vessels. The VHL Family Alliance provides information for families and physicians about this disorder, and local self-help support groups for families affected with VHL. We are dedicated to improving diagnosis, treatment, and quality of life for individuals and families affected by von Hippel-Lindau disease.

Thank you!

Many thanks to all those who have made donations this season. Your support is greatly appreciated. Please keep us in mind when you shop online. Use iGive where the VHLFA will receive a donation for each order you make -- all those pennies add up!

DONATE

JOIN US
NOW

VHL STORE

[Other Nations]

[Last edited 13-Mar-2012 ]

May is VHL
Awareness Month!
Tell your story: bit.ly/IASqlh

What's New?
	The Spring newsletter is now Online! research progress, family stories, and new clinical trial.
	Reports from the 2012 Symposium in Houston!
	Newsmaker article: Marston Linehan discusses role of genetics in Cancer
	See video about VHL on WCVB 5 Boston
	McCoys and VHL

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