• Vision and Mission

    VISION: VHLA envisions a cure for VHL

     
    MISSION: VHLA is dedicated to research, education, and support to improve awareness, diagnosis, treatment, and quality of life for those affected by VHL.
     
    VHL or von Hippel-Lindau is a genetic form of cancer. VHL patients battle a series of tumors throughout their lives. The VHL gene is involved in many other forms of cancer. Finding a cure for VHL will play a vital role in curing cancer!

  • Faces of VHL



    NEW PROGRAM:
    Monthly Telephone Discussions
  • Patient Testimonials

    The VHL Alliance has meant the world to me. Through this alliance I have met friends who can relate to the unique world of VHL. Questions, concerns and ideas about VHL have been through this organization. Many thanks and kudos to VHL Alliance. Truly, you have helped me climb the mountain of VHL.

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  • ABOUT VON HIPPEL-LINDAU (VHL)

  • VHL ALLIANCE HIGHLIGHTS

  • PLEASE HELP US FIND A CURE

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  • WHAT’S NEW AT VHLA

    VHLA Programs Available to You
    VHLA is your community of caring and support. See the summary of new programs:

    Clinical Care Center Updates
    New Clinical Care standards were announced to our current CCCs. Several have upgraded to the new standards:
    Comprehensive Clinical Care Centers (CCCC)
    Clinical Care Centers (CCC)
    To understand the standards CLICK HERE
    For the most current updates CLICK HERE

    CALL FOR APPLICATIONS!

    The VHL Alliance is pleased to announce a call for applications for research grant support on topics relevant to von Hippel-Lindau disease.

    FOR DETAILS CLICK HERE
    FOR AN OVERVIEW, CLICK HERE

    PLEASE NOTE IMPORTANT DEADLINES


    Time to send in the loose change that you have collected for the month of May 2015


    SEE DETAILS

    OCTOBER 2015 EVENTS IN CHICAGOLAND

    Fundraising Dinner & Auction
    Join us on Friday, October 16, 2015 to honor Sarah Nielsen, MS, CGC, and Jan & Scott Capinegro. See details

    Annual Patient-Caregiver Meeting
    Join us on Saturday, October 17, 2015 to find out the latest information on VHL.
    See agenda and details

    Team VHL 5K Run/Walk
    Join us on Sunday,
    October 18, 2015.
    See details

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    ©2015 by The VHL Alliance. All Rights Reserved.
    The VHL Alliance is a tax exempt 503(c)3 corporation
    Last Modified: September 23, 2014




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