• Vision and Mission

    VISION: VHLA envisions a cure for VHL

     
    MISSION: VHLA is dedicated to research, education, and support to improve awareness, diagnosis, treatment, and quality of life for those affected by VHL.
     
    VHL or von Hippel-Lindau is a genetic form of cancer. VHL patients battle a series of tumors throughout their lives. The VHL gene is involved in many other forms of cancer. Finding a cure for VHL will play a vital role in curing cancer!

  • Patient Testimonials

    The VHL Alliance has meant the world to me. Through this alliance I have met friends who can relate to the unique world of VHL. Questions, concerns and ideas about VHL have been through this organization. Many thanks and kudos to VHL Alliance. Truly, you have helped me climb the mountain of VHL.

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  • ABOUT VON HIPPEL-LINDAU (VHL)

  • VHL ALLIANCE HIGHLIGHTS

  • HELP US UNCOVER A CURE

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  • WHAT’S NEW AT VHLA

    VHLA Programs Available to You
    VHLA is your community of caring and support. See the summary of new programs:

    Clinical Care Center Updates
    New Clinical Care standards were announced to our current CCCs. Several have upgraded to the new standards:
    Comprehensive Clinical Care Centers (CCCC)
    Clinical Care Centers (CCC)
    To understand the standards CLICK HERE
    For the most current updates CLICK HERE

    MAY – VHL AWARENESS MONTH

    Join the VHLA Coin Drive!
    How much can you collect by June 2015?

    Save up loose change for the VHL Alliance.
    SEE MORE


    VHL Patient Vignettes

    Personal stories, thoughts, and tips submitted by people dealing with the diagnosis of von Hippel-Lindau

    NEWLY PUBLISHED! See details on ordering

    VHLA EVENT SUMMARIES

    2014 Annual Meeting, Maryland
    On October 18, 2014, the VHL Alliance held their annual meeting in Rockville, Maryland.
    Click here for the summary

    11th International Symposium
    The 11th International VHL Medical Symposium met in Madrid Oct 23-24, 2015.
    Click here for slides and audio
    Click here presentation summaries

    2015 New York City Gala
    The VHL Alliance held its 2nd annual NYC gala on January 29, 2015, honoring Dr. Eric Jonasch.
    Click here for details and pictures

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    ©2015 by The VHL Alliance. All Rights Reserved.
    The VHL Alliance is a tax exempt 503(c)3 corporation
    Last Modified: September 23, 2014




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