First Monday of every month. All are welcome to join—whether you have questions or just want to find out more. There will be time near the end of the call for an open discussion of other VHL-related topics. We look forward to another thoughtful discussion! This facilitated call takes place on the first...
Second Wednesday of every month. Living with low or no vision creates unique challenges for VHL patients. The Low/No Vision Monthly Discussion Call is specifically designed for support and sharing of important tips and resources. Our call topic: How is VHL affecting you physically? All are welcome to join—whether you have questions...
Be a part of VHLA history by joining walkers all over the country in the first ever VHL walk! Sign up as a team or individual walker to fundraise. Then, on walk day, gather with your team (and maybe even other teams in your area) to watch our kickoff video online, then walk around your...
Third Monday of every other month. Please join us on the third Monday every other month to discuss how we can help our children thrive with VHL. Our topic How to navigate the challenging emotions that come with having a child with a chronic illness (and how to know when we aren’t doing that...
